BROADCASTS.com

What happens when your only question is, why didn’t you protect my child?

What happens when no one understands your child is ill and you are now in the firing line to conform?

What do you do, when suddenly, you no longer recognise your child and their behaviour spirals out of control and they just want to be understood and accepted?

As parents, as carers, we protect and understand our children, but what happens when the protocols designed to safeguard our children exacerbates their illness and symptoms?

This is Caroline’s story, Taylors mum who was expected to cope with her child’s illness that no one understood and feels she failed Taylor. How do you reject the systems designed to protect?

What about the support systems for parents and carers of children with ME/cfs, they also need to talk, share and advocate their child’s illness?

Key takeaways

• Parents whose children are diagnosed with ME/cfs are missing precious days and years with their children
• It may take months to be diagnosed with ME/cfs, and many children are not diagnosed
• What happens when safeguarding becomes an issue when the child fails to attend school?
• Parents are under immense pressure to conform and this pressure is translated to the child – why?
• There is no single management strategy for ME/cfs
• Increasing a child’s energy levels, may have a detrimental impact on their health
• Parents need to be honest without the fear of being reprimanded if the advice is detrimental to their child’s health
• A child who is misunderstood due to their illness may rebel, and impact their behaviour
• A teenager who is misunderstood will rebel, exacerbating their illness
• Is the system broken, what can be done to help our children who are diagnosed with ME/cfs?
• Support systems for parents and carers will inform, support and advocate change
• The aspirations for our child change and our renewed focus is to protect and nurture the fragile child
• How do you stop feeling guilty that you failed your child by simply conforming?
• How many generations will this illness affect, before it is recognised?
• Our children should NOT be missing!

This is our journey unlocking our visibility! Together we can still make a difference.

Connect with me on Facebook and Instagram

Visit our official website www.jak-group.co.uk

Valuable resources: Action for ME and the NHS

With thanks to:

Caroline Tracey

Taylor Lilly

Jamie York and Rob Moore

Oli Corse (Intro and outro)

purple-planet.com (Music)

braydesign.co.uk (Darren Bray – Graphics)