Living and dealing with type 3 spinal muscular atrophy (SMA)

Published: Oct. 3, 2022, 4 a.m.

Desirée and Jared are both incredible people with demanding lives as parents. They also both live with type 3 spinal muscular atrophy (SMA). Desirée and Jared were featured in The Globe and Mail earlier this month for a story that revealed some of the discrepancies in care and medication access Canadians endure depending on where they live. Desirée lives in Saskatoon and Jared lives in St. Catherines, Ont.