Hope for Ultra-Rare Diseases

Published: April 30, 2021, 6:45 p.m.

b"We\\u2019ve spent decades trying to understand human biology, health, and illness at the level of our genes. For people with extremely rare genetic conditions, that work is finally starting to pay off. Thanks to the emerging field of hyper-personalized medicine, and the work of new organizations like the N-Lorem Foundation, we're entering a future where diseases linked to rare mutations don\\u2019t always have to be lethal."