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b"ONCE UPON A GENE - EPISODE 030\\nTrust Your Instincts; An Early Intervention Can Save Your Life\\nAnjela Yumel lived through a natural disaster, relocated to the US from the Philippines, was without her mother for a year, took on the responsibility of caring for her siblings, became a single mom, had a medically complex child Jaela, who was born with Hurler Syndrome. She's amazing and I'm honored to share this story with you.\\xa0\\n\\nEPISODE HIGHLIGHTS\\nTell us about yourself and your daughter.\\nHow did you get the bone marrow donor match?\\nWas there any type of isolation you had to do before, during or after the bone marrow transplant?\\nWhat do the fusions entail? Does she have to have them every week for the rest of her life?\\nHow has this experience affected your daughter developmentally?\\nWill your daughter have to have another bone marrow transplant at some point in her life?\\nShare how you've changed your career to give back.\\nWhat would you say to the parents of complex kids who can't create the bandwidth to think about the part of the future of caring for our kids when we're gone?\\n\\nLINKS AND RESOURCES MENTIONED\\nBuilt Ford Tough Facebook Group\\nhttps://www.facebook.com/groups/1877643259173346/\\nNational MPS Society\\nhttps://mpssociety.org/\\nJaela \\u2019s CaringBridge Journal\\nhttps://www.caringbridge.org/visit/babyjaela/journal\\n\\nTUNE INTO THE ONCE UPON A GENE PODCAST\\nSpotify\\nApple Podcasts\\nStitcher\\nOvercast\\n\\nCONNECT WITH EFFIE PARKS\\nWebsite\\nTwitter\\nInstagram\\nBuilt Ford Tough Facebook Group"