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b"Rare Together Watch Together - Film Selections from The Disorder Channel in Partnership with Global Genes\\nDan DeFabio and Bo Bigelow founded The Rare Disease Film Festival and have just created The Disorder Channel, accessible through Amazon Fire and Roku. Their work is connecting patients and families, raising awareness and inspiring a lot of conversations.\\nGlobal Genes is having a virtual 10 day summit, September 15th - 25th, 2020. On September 16th, 17th and 18th, they're holding a watch party with Dan and Bo. This event is free for patients and advocates, so check it out!\\n\\nEPISODE HIGHLIGHTS\\nDan, how long did you think about creating The Rare Disease Film Festival and why did you want Bo to be a part of it?\\nBo, what did you think you could add to The Rare Disease Film Festival?\\nTell me about the first festival you had.\\nBo, how did you feel after the first festival weekend concluded?\\nDue to the most recent event in New York City being cancelled, where did the idea to pivot into a tv channel come from?\\nHow does someone create a film?\\nTell us about the event with Global Genes that's coming up in a few weeks.\\xa0\\n\\nLINKS AND RESOURCES MENTIONED\\nThe Rare Disease Film Festival\\nhttps://www.rarediseasefilmfestival.com/\\nThe Disorder Channel\\nhttps://www.thedisordercollection.com/\\nGlobal Genes\\nhttps://globalgenes.org/\\nA RARE Patient Advocacy (un)Summit\\nhttps://globalgenes.org/event/live/\\n ONCE UPON A GENE - EPISODE 015 - Films and Fatherhood\\nhttps://bit.ly/34xmJfH\\n ONCE UPON A GENE - EPISODE 028 - Rare Disease Trailblazer and Co-Founder of Disorder - The Rare Disease Film Festival\\nhttps://bit.ly/2YzhAQy\\n How To Make Your Own Rare Disease Film\\n https://www.rarediseasefilmfestival.com/blog/2020/3/2/how-to-make-your-own-rare-disease-film\\n\\nTUNE INTO THE ONCE UPON A GENE PODCAST\\nSpotify\\nApple Podcasts\\nStitcher\\nOvercast\\n\\nCONNECT WITH EFFIE PARKS\\nWebsite\\nhttps://effieparks.com/\\nTwitter\\nhttps://twitter.com/OnceUponAGene\\nInstagram\\n https://www.instagram.com/onceuponagene.podcast/?hl=en\\nBuilt Ford Tough Facebook Group\\nhttps://www.facebook.com/groups/1877643259173346/"