Rare Disease Trailblazer and Co-Founder of Disorder - The Rare Disease Film Festival

Published: April 30, 2020, 11 a.m.

b"ONCE UPON A GENE - EPISODE 028\\nRare Disease Trailblazer and Co-Founder of Disorder - The Rare Disease Film Festival\\nBo Bigelow is the co-founder of Disorder: The Rare Disease Film Festival. He's joining today to talk about life in quarantine and his beautiful daughter Tess, who inspired him to produce a podcast, Stronger Everyday.\\xa0\\n\\nLINKS AND RESOURCES MENTIONED\\nDisorder: The Rare Disease Film Festival\\nhttps://www.rarediseasefilmfestival.com/\\n Episode 15: Films and Fatherhood with Daniel DeFabio\\n https://effieparks.com/podcast/008-tanjs-akayy-jr78y-ja2e8-zanza-njkxy\\nStronger Everyday Podcast\\nhttp://www.portlandrootsmedia.com/strongerpodcast\\n Discovering new diseases with the internet: How to find a matching patient\\n http://matt.might.net/articles/rare-disease-internet-matchmaking/\\nFoundation for USP7 Related Diseases\\nhttps://www.usp7.org/\\n\\nTUNE INTO THE ONCE UPON A GENE PODCAST\\nSpotify\\nhttps://open.spotify.com/show/5Htr9lt5vXGG3ac6enxLQ7\\n Apple Podcasts\\n https://podcasts.apple.com/us/podcast/once-upon-a-gene/id1485249347\\nStitcher\\nhttps://www.stitcher.com/podcast/once-upon-a-gene\\nOvercast\\n https://overcast.fm/itunes1485249347/once-upon-a-gene\\n\\nCONNECT WITH EFFIE PARKS\\nWebsite\\nhttps://effieparks.com/\\nTwitter\\nhttps://twitter.com/OnceUponAGene\\nInstagram\\nhttps://www.instagram.com/onceuponagene.podcast"