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b'ONCE UPON A GENE - EPISODE 080\\nRare Disease and Grief - It\\u2019s OK That You\\u2019re Not OK with Megan Devine\\nMegan Devine is the author of It\'s OK That You\'re Not OK, a psychotherapist, a grief advocate and communication expert dedicated to helping people face their toughest experiences. This book, her story and explanation of grief changed everything for me. After this episode, be sure to get a copy of the book for yourself, join her community and check out her new illustrated journal, How to Carry What Can\'t Be Fixed.\\nEPISODE HIGHLIGHTS\\nCan you share the background on how your book came about?\\nI\'ve been a psychotherapist for about 18 years working with trauma, but when my partner died in an accident, my perspective on loss changed. I saw that the way we talk about grief in culture is flawed. When my partner died, I closed my practice. I began speaking about grief publicly, training and writing books to do what I could to help grieving people feel more heard and supported. Today, I\'m a psychotherapist, author and grief advocate and I talk about the ways we get grief wrong and what to do better for us and for others.\\xa0\\nWhat are the biggest misconceptions about grief?\\nGrief usually belongs to death, but grief is a spectrum and you get to claim grief for yourself. Just because other people may have it worse doesn\'t mean you can\'t grieve. You don\'t have to demote your grief based on other people having more of a right to be grieving. All grief is valid, but that doesn\'t mean that all grief is the same. If we can be curious about the different ways we grieve, it\'s a way for us to come together to talk about it and meet each person\'s loss and grief with curiosity instead of trying to fit it into a one-size-fits-all package.\\xa0\\nWhat do you mean by "some things can\'t be fixed and they must be carried"?\\nWe live in a problem-solution culture. Not everything has a solution and not everything works out for the best. It\'s not our job as humans to rise above everything. It\'s not realistic.\\nTell me about the movement you\'ve created for people to acknowledge their grief.\\nWhen we tell the truth about grief and let people tell their truth about their own experience, they get to just be in pain. If you think about grieving, you often find that you have to defend your grief and experience. That need to defend your experience causes annoyance and suffering because you\'re expending energy on defending your right to feel how you feel instead of feeling supported. Refuge In Grief is online, on Instagram, Facebook and Twitter. Refuge In Grief is the grievers community. We have to start normalizing grief and talking about what it\'s really like and what power there is in healthy grief. There\'s also a Writing Your Grief course that has awesome writing prompts, but mostly a magical community that forms during the live sessions. We open new sessions about every five weeks.\\nHow can we show up for someone who is grieving and support them?\\nInterrupt your impulse to fix. It\'s human to find it difficult to watch someone you care about in pain and not try to make it better. Recognize your impulse to make it better and think about what you can do that would feel supportive in the moment. Don\'t assume you know what someone needs, don\'t jump in with solutions, but instead acknowledge and offer what you can offer and ask if your offering is helpful.\\n\\nLINKS & RESOURCES MENTIONED\\nIt\'s OK That You\'re Not OK\\nhttps://www.amazon.com/gp/product/B073XXYKLP/ref=dbs_a_def_rwt_bibl_vppi_i0\\nHow to Carry What Can\'t Be Fixed\\nhttps://www.amazon.com/gp/product/1683643704/ref=dbs_a_def_rwt_bibl_vppi_i3\\nWriting Your Grief\\nhttps://refugeingrief.com/writing-your-grief/\\nSpeaking Grief Documentary\\nhttps://speakinggrief.org/\\nRefuge in Grief\\nhttps://refugeingrief.com/\\nRefuge In Grief on Instagram\\nhttps://www.instagram.com/refugeingrief/\\nRefuge In Grief on Facebook\\nhttps://www.facebook.com/refugeingrief\\nRefuge In Grief on Twitter\\nhttps://twitter.com/refugeingrief'