Podcasts Culture Once Upon A Gene From the Rare Disease Bunker to Many More Birthdays - A Tale of a Gene Therapy that Cures her Daughter with AADC Deficiency - The First Spanish Patient - with Carolina Moreno

From the Rare Disease Bunker to Many More Birthdays - A Tale of a Gene Therapy that Cures her Daughter with AADC Deficiency - The First Spanish Patient - with Carolina Moreno

Published: June 22, 2023, 11 a.m.

b'ONCE UPON A GENE - EPISODE 192\\nFrom the Rare Disease Bunker to Many More Birthdays - A Tale of a Gene Therapy that Cures her Daughter with AADC Deficiency - The First Spanish Patient - with Carolina Moreno\\n\\nEnjoy this presentation by rare disease mom, Carolina Moreno, which she originally shared at the 2023 International CTNNB1 conference held in Spain.\\n\\nLINKS & RESOURCES MENTIONED\\nAhora s\\xed, te quiero tal como eres / Now yes, I love you as you were\\nhttps://neret.cat/producte/ahora-si-te-quiero-tal-como-eres/\\nColumbus Foundation\\nhttps://fundacioncolumbus.org/\\nFirst patient treated for AADC deficiency with gene therapy by Columbus Foundation\\nhttps://fundacioncolumbus.org/first-patient-treated-for-aadc-deficiency-with-gene-therapy-by-columbus-foundation/'