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b"A Family Plagued with Rare Genetic Disease, Adrenoleukodystrophy with Diane Kane\\nIf you haven\\u2019t listened to Episode 38, Rare Like Us with Taylor Kane, go back and listen to that episode here. Taylor Kane's mom, Diane Kane, had two toddlers when her husband was suddenly diagnosed with a rare disorder called Adrenoleukodystrophy (ALD). I'm in awe of her strength, grit and grace as a caregiver to her husband John, all while being a new mom, working and preparing for all the ways ALD would disrupt her family and change it forever.\\xa0\\n\\nEPISODE HIGHLIGHTS\\nWhat is ALD and what are the symptoms?\\nWhat happened after the Adrenoleukodystrophy (ALD) diagnosis?\\nHow were you able to manage and cope with the diagnosis and life at that time?\\nWhat wisdom can you share with other caregivers?\\n\\nLINKS AND RESOURCES MENTIONED\\n EPISODE 038 - Rare Like Us with Taylor Kane\\n https://effieparks.com/podcast/episode-38-rare-like-us-with-taylor-kane\\n Rare Like Us\\n https://www.amazon.com/Rare-Like-Us-Finding-Plagued/dp/1543978819\\nA RARE Patient Advocacy (un)Summit\\nhttps://globalgenes.org/event/live/\\nGlobal Genes\\nhttps://globalgenes.org/\\n\\nTUNE INTO THE ONCE UPON A GENE PODCAST\\nSpotify\\n Apple Podcasts\\nStitcher\\nOvercast\\n\\nCONNECT WITH EFFIE PARKS\\nWebsite\\nhttps://effieparks.com/\\nTwitter\\nhttps://twitter.com/OnceUponAGene\\nInstagram\\n https://www.instagram.com/onceuponagene.podcast/?hl=en\\nBuilt Ford Tough Facebook Group\\nhttps://www.facebook.com/groups/1877643259173346/"