BROADCASTS.com

I have a “Now or Never” philopsophy to life that sometimes gets me into trouble. Well, let’s face it….always gets me into trouble! Living with a physical progressive disability involves a lot of pain, lack of mobility and extreme fatigue every day. This kind of disease is constant. It doesn’t ebb and flow with flares. It’s there all the time, slowly worsening. The sensible approach to this kind of chronic illness life is to pace all activities, listen to your body and lower all expectations. Generally I do. I advocate pacing, live and breathe it actually. Partly as I don’t have a choice, plus I know it helps enormously with pain management. The problem is, despite living with a severe disability for 5 years, my mind still seems to disconnect from my body on occasion. I can still visualize myself jumping out of my chair and cleaning up the kitchen, dusting the shutters, wiping down the bathroom tiles, making the bed, getting dressed, doing hair and makeup and looking like “little Miss Perfect” with all the ease of a healthy 18 year old. So how do I manage a Pushing and Pacing Approach as a person with a severe physical disability.......It's not easy but it is possible!