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I have a \u201cNow or Never\u201d philopsophy to life that sometimes gets me into trouble.\nWell, let\u2019s face it\u2026.always gets me into trouble!\nLiving with a physical progressive disability involves a lot of pain, lack of mobility and extreme fatigue every day. This kind of disease is constant. It doesn\u2019t ebb and flow with flares. It\u2019s there all the time, slowly worsening.\nThe sensible approach to this kind of chronic illness life is to pace all activities, listen to your body and lower all expectations.\nGenerally I do. I advocate pacing, live and breathe it actually. Partly as I don\u2019t have a choice, plus I know it helps enormously with pain management.\nThe problem is, despite living with a severe disability for 5 years, my mind still seems to disconnect from my body on occasion. I can still visualize myself jumping out of my chair and cleaning up the kitchen, dusting the shutters, wiping down the bathroom tiles, making the bed, getting dressed, doing hair and makeup and looking like \u201clittle Miss Perfect\u201d with all the ease of a healthy 18 year old.\nSo how do I manage a Pushing and Pacing Approach as a person with a severe physical disability.......It's not easy but it is possible!