Podcasts Culture Letters To My Younger Self 41. What I’ve Learned from Spinal muscular Atrophy with Beth Moore

41. What I’ve Learned from Spinal muscular Atrophy with Beth Moore

Published: March 22, 2021, 10:41 p.m.

Beth Moore is a mother of 3 children, two of which have had Spinal Muscular atrophy. Her son William spent his life on a ventilator and in a wheelchair. When her daughter was born with the same genetic condition, they signed her up for a clinical study days after she was born. This miracle medication has enabled Mary to breathe on her own and even walk and talk. Beth has dedicated her life to helping her kids and advocating for SMA and genetic testing for the condition. Beth is an inspiring person and is so positive and shares so many ways to take control of your life and live it to the fullest.