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Hey peeps ! I am back this week and we are chatting with Brooke. Brooke is the mother of Evan, a boy born with \\u201cdesigner genes\\u201d. He is only a handful of people worldwide with his particular genetic condition, related to gene RPL10. Brooke is also the creator of Everyday Evan, her families blog that is striving to provide hope, Joy, Education, and prayers for families who find themself in a similar situation. I\\u2019m you host Theresa, So lets dive in\\xa0

Welcome Brooke, thank you so much for sharing your families story with us today!

While reading your blog and Evan\\u2019s story it reminded me a lot of Kristine\\u2019s story with her diagnosis. From what I read Evan has a gene mutation but because it is so rare they have no official name for it. Can you explain a little bit about Evan and his gene mutation and how you came about to getting his diagnosis?

With Evan\\u2019s rare disease - what does a typical day look like for you and your family? What extra care does he need?

Can you share for those listening to what some of the most frustrating aspects are of Evan\\u2019s condition?

How do you cope with having a child with additional needs?

Because Evan\\u2019s mutation is genetic what are the chances of you having another child like him?

Do you ever have situations with strangers where you need to educate them on Evan?

We really want to touch on Your Blog Everyday Evan - can you share a little bit about that and what you are hoping to accomplish with it?

Since starting your blog, what impact have you noticed it has made on your family as well as other rare disease-fighters?

What is next when it comes to Evan and your blog?\\xa0

Myeverydayevan.com\\xa0

We want to thank you so much for coming on and sharing Evan\\u2019s story. Often times that decision to let the world into your home is a big and difficult one. The internet and those behind keyboards aren\\u2019t always kind. Sharing your child takes true strength and if you didn\\u2019t the world would know even less about children like him. You and your family are incredibly inspiring.\\xa0

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