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\\nThis edition has been funded by the City of Edinburgh Council and NHS Lothian\\u2019s Self-directed Support Innovation Fund.
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In the second of our two programmes focusing on young carers for people in pain, we hear about the effect of pain on relationships between parents and children.
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Family therapist Liz Forbat explains how pain can disrupt transitions from childhood to independent adulthood, especially during those difficult teenage years. She discusses with presenter Paul Evan\\u2019s his \\u2018martyrdom\\u2019 approach to managing chronic pain \\u2013 he recalls keeping his children at a distance from it \\u2013 and the dangers of building barriers between family members in a bid to protect them from the effects of the pain.
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We hear the young person\\u2019s perspective from Kim Radtke, who grew up with a father often made irritable and emotionally unavailable by his ankylosing spondylitis. The situation was exacerbated, Kim says, because she and her brother did not fully understand the condition and were therefore unable to empathise and communicate with their father about it. Only as an adult has she been able to make the step \\u2013 so important, according to Liz Forbat \\u2013 of separating the pain from the person.
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#Ankylosingspondylitis #Carers #Communicationskills #Explainingyourconditiontochildren #Familyandrelationships #Psychologicaleffectsofpain #Youngpeopleandchildren