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Lisa Loughran from Red Hook, NY, visits Radio Rotary\u2019s microphone to tell about the story behind the annual Red Hook event, Roger\u2019s Run for AMC Awareness. This is a community-wide set of runs and walks that had its inspiration in the discovery vis ultrasound that Loughran\u2019s son would be born with a congenital condition, arthrogryposis multiplex congenita, usually called AMC. This condition affects joints and muscle throughout the body. Roger Loughran was born with his limbs extended\u2014the joints had \u201cfrozen\u201d in position. Loughran, a runner and cyclist, originated the run-walk event to raise money for AMSI, where she had discovered other parents of children with AMC, parents whose stories gave her hope. Indeed, twelve years and much physical therapy later, Roger Loughran plays basketball and football. He is well known throughout the Red Hook community. Roger\u2019s Run has involved that community every June in a group project to support research into AMC and its treatment.

Learn more:

Roger\u2019s Run 4 AMC: https://www.rogersrun4amc.com/

AMCSI (Arthrogryposis Multiplex Congenita Support Inc); https://www.amcsupport.org/

AMC Support on Facebook: https://www.facebook.com/AMCSUPPORT/

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WORDS TO LINK: Arthrogryposis Multiplex Congenita, AMC, Red Hook, NY, Runs and Walks