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What is Chronically Surviving with Marcelle Longlade\nMarcelle Longlade is living with multiple rare diseases. Her platform, Chronically Surviving connects community, offers accessible yoga and other healing practices and services.\xa0\n\nEPISODE HIGHLIGHTS\nCan you tell me how you became involved with Our Odyssey?\nHad you been part of an advocacy or support group prior?\nCan you tell us about the rare diseases you're living with?\nWhat affects you the most daily?\nTell me about the shift from your biomedical engineer job.\xa0\nWhen you started yoga, did you know right away that you wanted to tailor your practice to the rare disease and disability community?\nWhat are you most excited about for the future?\n\nLINKS AND RESOURCES MENTIONED\nEPISODE 036 - Anna Laurent on Alagille Syndrome and Her Road to Advocacy\n https://effieparks.com/podcast/episode-36-anna-laurent-alagille-syndrome\nOne Rare\nhttps://onerare.org/\nOur Odyssey\nhttps://ourodyssey.org/\nChronically Surviving\nhttps://www.chronicallysurviving.com/\n\nTUNE INTO THE ONCE UPON A GENE PODCAST\nSpotify\nhttps://open.spotify.com/show/5Htr9lt5vXGG3ac6enxLQ7\n Apple Podcasts\n https://podcasts.apple.com/us/podcast/once-upon-a-gene/id1485249347\nStitcher\nhttps://www.stitcher.com/podcast/once-upon-a-gene\nOvercast\n https://overcast.fm/itunes1485249347/once-upon-a-gene\n\nCONNECT WITH EFFIE PARKS\nWebsite\nhttps://effieparks.com/\nTwitter\nhttps://twitter.com/OnceUponAGene\nInstagram\n https://www.instagram.com/onceuponagene.podcast/?hl=en\nBuilt Ford Tough Facebook Group\nhttps://www.facebook.com/groups/1877643259173346/