Podcasts Culture Once Upon A Gene Loving Large: A Mother's Rare Disease Memoir With Patti Hall

Loving Large: A Mother's Rare Disease Memoir With Patti Hall

Published: June 8, 2020, 11 a.m.

ONCE UPON A GENE - EPISODE 033\nLoving Large: A Mother's Rare Disease Memoir With Patti Hall\nThis episode is about the larger-than-life love that a mother has for her son. Patti Hall is the author of the book, Loving Large: A Mother's Rare Disease Memoir. In reading her book, I learned a lot about the rare disease called gigantism. I\u2019m so grateful when people share their stories about the rare disease life because it\u2019s so important in so many ways and you never know who will be touched by it.\xa0\nEPISODE HIGHLIGHTS\nWhy did you write this story?\nWhat is your son's diagnosis and what was happening in those early days?\nHow long did it take to have a treatment plan?\nWhen you were searching for doctors and surgeons, were you finding they were intrigued or afraid to get involved?\nWas writing this memoir therapeutic for you?\nWhat would you say to parents with young babies who are just receiving a diagnosis?\nWhat would you say to parents like me who have a story to tell, but they aren't writers?\n\nLINKS AND RESOURCES MENTIONED\nLoving Large: A Mother's Rare Disease Memoir\nhttps://pattimhall.com/loving-large-book/\nPatti Hall Website\nhttps://pattimhall.com/\nPatti Hall Facebook\nhttps://www.facebook.com/pattimhallwriter\nPatti Hall Instagram\nhttps://www.instagram.com/patti_m_hall/\nPatti Hall Twitter\nhttps://twitter.com/pattimhall\n\nTUNE INTO THE ONCE UPON A GENE PODCAST\nSpotify\n Apple Podcasts\nStitcher\nOvercast\n\nCONNECT WITH EFFIE PARKS\nWebsite\nhttps://effieparks.com/\nTwitter\nhttps://twitter.com/OnceUponAGene\nInstagram\n https://www.instagram.com/onceuponagene.podcast/?hl=en\nBuilt Ford Tough Facebook Group\nhttps://www.facebook.com/groups/1877643259173346/