While I can\u2019t organise what my body decides to do in terms of my health, I can be organised with managing the consequences, from prescription management, doctors appointments, regular testing reminders etc.\nThe key though I think, to staying on top of a complex illness, is building a really good working relationship with your medical team .If nothing else, remember this last point\u2026\u2026you are employing your Doctors. You are the Boss!