Podcasts Technology Liverpool Live Local mum Kate Toohey on her campaign to help her son, James, with batten disease

Local mum Kate Toohey on her campaign to help her son, James, with batten disease

Published: March 1, 2018, 12:59 p.m.

Local mum, Kate Toohey, is urging the NHS to fund a drug which she believes could help her 6 year old son, James, to lead a normal life after he was diagnosed with the extremely rare 'batten disease'.

\n\n\n

The condition can lead to dementia and also stop the body from working.

\n\n\n

She told Mick Coyle how James was lucky enough to go on a medical trial for a drug that can slow down the progression of the disease and even stabilise it.

\n\n\n

Kate is now urging the NHS to fund the drug which costs \xa3500,000 a year by backing a national petition which you can sign here: http://bit.ly/2oAxh89