Podcasts Health TSC Now
TSC Now

TSC Now

18 episodes

TSC Now, a podcast from the TSC Alliance®, features interviews with clinicians, researchers, TSC Alliance staff and others on topics like tuberous sclerosis complex (TSC) research, epilepsy surgery options, educational advocacy, TSC-associated Neuropsychiatric Disorders (TAND), seizure control and more. Look for new episodes every month.

Podcasts

Episode 49: Community Spotlight Gloria Triebenbach

Published: Dec. 29, 2023, 11:48 a.m.
Duration: 33 minutes 46 seconds

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Episode 48: Community Spotlight Kristen Moore

Published: Dec. 26, 2023, 1:16 p.m.
Duration: 28 minutes 4 seconds

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Episode 47: Closing the Epilepsy Treatment Gap Worldwide

Published: Dec. 22, 2023, 2:31 p.m.
Duration: 31 minutes 49 seconds

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Episode 46: Understanding drug resistant epilepsy and treatment options

Published: Oct. 27, 2023, 6:35 p.m.
Duration: 12 minutes 49 seconds

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Episode 45: The 2023 International TSC Research Conference

Published: Oct. 19, 2023, 3:33 p.m.
Duration: 41 minutes 42 seconds

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Episode 44: Rare Conversations

Published: April 20, 2023, 3:05 p.m.
Duration: 38 minutes 13 seconds

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Episode 43: The TSC-STEPS Trial

Published: March 15, 2023, 1:48 p.m.
Duration: 32 minutes 40 seconds

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Episode 42: Understanding Seizure Clusters

Published: Feb. 3, 2023, 10:05 p.m.
Duration: 16 minutes 39 seconds

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Episode 41: Help Today, Help Tomorrow

Published: Dec. 27, 2022, 2:02 p.m.
Duration: 41 minutes 18 seconds

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Episode 40: Totally Super Cool!

Published: Sept. 9, 2022, 2:28 a.m.
Duration: 13 minutes 43 seconds

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Episode 39: Inspiring a World TSC Community

Published: Sept. 2, 2022, 2:43 p.m.
Duration: 31 minutes 24 seconds

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Episode 38: Galvanizing a World TSC Community

Published: Aug. 26, 2022, 11:42 a.m.
Duration: 38 minutes 58 seconds

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Episode 37: The MILED Trial and the Future of LAM Research

Published: July 1, 2022, 6:19 p.m.
Duration: 23 minutes 4 seconds

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Episode 36: TSC Awareness Month

Published: June 8, 2022, 12:32 a.m.
Duration: 37 minutes 11 seconds

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Episode 35: The Past, Present and Future of Autism Research in TSC

Published: April 30, 2022, 5:53 p.m.
Duration: 33 minutes 56 seconds

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Episode 34: Celebrating 20 Years of Comedy for a Cure

Published: April 2, 2022, 2:45 a.m.
Duration: 34 minutes 29 seconds

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Episode 33: Noema, Basimglurant and a New Clinical Trial for Seizures in TSC

Published: Feb. 7, 2022, 9:24 p.m.
Duration: 17 minutes 50 seconds

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Episode 32: The 2022 World TSC Conference

Published: Jan. 28, 2022, 8:56 p.m.
Duration: 17 minutes 34 seconds

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Episode 31: The Present and Future of TSC & LAM Research

Published: Dec. 22, 2021, 8:56 p.m.
Duration: 31 minutes 54 seconds

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Episode 30: Infantile Spasms Awareness Week 2021

Published: Nov. 30, 2021, 7 a.m.
Duration: 15 minutes 34 seconds

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Episode 29: The TSC Navigator

Published: Oct. 29, 2021, 7:55 p.m.
Duration: 24 minutes 51 seconds

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Episode 28: Comedy for a Cure 2021!

Published: Oct. 1, 2021, 12:07 a.m.
Duration: 43 minutes 7 seconds

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Episode 27: Going Back to School and Caring for the Caregiver

Published: Sept. 1, 2021, 12:24 a.m.
Duration: 33 minutes 46 seconds

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Episode 26: The Road to Newborn Screening in TSC

Published: July 29, 2021, 5:22 a.m.
Duration: 45 minutes 14 seconds

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Episode 25: Lymphangioleiomyomatosis & Worldwide LAM Awareness Month (#WWLAM)

Published: June 30, 2021, 5:59 p.m.
Duration: 26 minutes 15 seconds

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Episode 24: Achieving Universal Health Coverage and Driving Innovative Research Through Global Collaboration

Published: May 29, 2021, 2:21 a.m.
Duration: 43 minutes 56 seconds

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Episode 23: Autism Spectrum Disorder in TSC and TACERN

Published: May 1, 2021, 2:50 a.m.
Duration: 24 minutes 20 seconds

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Episode 22: Overcoming Hurdles with Health Plans and Specialty Pharmacies

Published: March 30, 2021, 5:41 p.m.
Duration: 44 minutes 44 seconds

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Episode 21: Noema, Basimglurant and a New Clinical Trial for Seizures in TSC

Published: Feb. 8, 2021, 7:19 p.m.
Duration: 19 minutes 57 seconds

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Episode 20: The 2021 Virtual March on Capitol Hill

Published: Jan. 29, 2021, 3:35 p.m.
Duration: 36 minutes 12 seconds

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Episode 19: Infantile Spasms Awareness Week (#ISAW2020)

Published: Dec. 8, 2020, 11:01 p.m.
Duration: 32 minutes 1 second

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Episode 18: Understanding COVID-19s Impact on Those with TSC & LAM

Published: Nov. 24, 2020, 11:48 p.m.
Duration: 19 minutes 42 seconds

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Episode 17: Gene Therapy in TSC

Published: Oct. 31, 2020, 1:15 a.m.
Duration: 20 minutes 41 seconds

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Episode 16: COVID-19 and Back to School

Published: Aug. 28, 2020, 11:15 p.m.
Duration: 53 minutes 40 seconds

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Episode 15: Managing Behaviors During COVID-19 (Part 2) + A New Partnership with SeizureTracker

Published: Aug. 1, 2020, 12:39 a.m.
Duration: 50 minutes 18 seconds

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Episode 14: Managing Aggressive and Harmful Behaviors During COVID-19 (Part 1)

Published: July 1, 2020, 12:13 a.m.
Duration: 26 minutes 52 seconds

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Episode 13: TSC Global Awareness Month in the Age of COVID-19

Published: May 31, 2020, 1:21 p.m.
Duration: 1 hour 29 seconds

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Episode 12: Living with TSC During COVID-19

Published: April 26, 2020, 2:29 p.m.
Duration: 41 minutes 54 seconds

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Episode 11: A #March4TSCresearch Recap & Update on COVID-19

Published: March 31, 2020, 3:58 p.m.
Duration: 33 minutes 54 seconds

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Episode 10: Expanding Coverage and Ensuring Access to Medications

Published: Feb. 26, 2020, 11:03 a.m.
Duration: 25 minutes 49 seconds

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Episode 9: The State of the TS Alliance

Published: Jan. 22, 2020, 2:01 p.m.
Duration: 17 minutes 55 seconds

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Episode 8: Excerpts from AES and the Current State of Epilepsy Research

Published: Dec. 16, 2019, 6:19 p.m.
Duration: 38 minutes 24 seconds

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Episode 7: Common Parent/Caregiver Challenges and Advocating for Your Health

Published: Nov. 16, 2019, 2:08 p.m.
Duration: 48 minutes 55 seconds

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Episode 6: TSC-Associated Neuropsychiatric Disorders (TAND)

Published: Oct. 15, 2019, 8:34 p.m.
Duration: 33 minutes 37 seconds

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Episode 5: TSC Kidney Manifestations & Consensus Guidelines for Surveillance and Treatment

Published: Sept. 15, 2019, 10:09 p.m.
Duration: 36 minutes 28 seconds

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Episode 4: Educational Issues in TSC and How to Advocate for Your Child in School

Published: Aug. 16, 2019, 12:06 a.m.
Duration: 23 minutes 31 seconds

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Episode 3: The 2019 International TSC Research Conference

Published: July 16, 2019, 5:57 p.m.
Duration: 37 minutes 14 seconds

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Episode 2: Epilepsy in TSC and Laser Ablation Surgery with Dr. Daniel Curry

Published: June 15, 2019, 8:46 p.m.
Duration: 57 minutes 49 seconds

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Episode 1: TSC Global Day, 45th Anniversary and the Future of TSC Research

Published: May 15, 2019, 7:11 p.m.
Duration: 1 hour 15 minutes 6 seconds

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