39. World Narcolepsy Day with Julie Flygare, President & CEO of Project Sleep
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#39: In this episode, I chat with Julie Flygare, President & CEO of Project Sleep about World Narcolepsy Day 2021 (celebrated on September 22nd each year). I was diagnosed with Narcolepsy while I was a college student at Colorado State. Then in 2014, my cataplexy symptoms developed. This is a neurological condition that has so many stigmas and misinformation. I\'m so grateful to Julie for the work she\'s doing to help people get diagnosed faster and just general awareness.
To connect with Julie, click HERE
To connect with Leyla, click HERE
Check out Project Sleep, HERE
Julie Flygare, JD, currently serves as President & CEO of Project Sleep. She is\\xa0an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of\\xa0Wide Awake and Dreaming: A Memoir of Narcolepsy.\\xa0
Since receiving a\\xa0diagnosis of narcolepsy\\xa0with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting her current role as President & CEO of Project Sleep, Flygare served as President of Project Sleep\\u2019s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope.
Additionally, she served on the National Institutes of Health\\u2019s Sleep Disorders Research Advisory Board from 2012 \\u2013 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.
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