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Eric and I weren\\u2019t sure what to call this podcast\\xa0 - storytelling and medicine? Narrative medicine?\\xa0 We discussed it with today\\u2019s guests Heather Coats, palliative care NP-scientist, and Thor Ringler, poet.\\xa0 It wasn\\u2019t until the end that the best term emerged - storycatching.\\xa0 Because that really is what this is about.\\xa0 Clinicians \\u201ccatching\\u201d patient life stories.\\xa0\\xa0\\xa0

What\\u2019s in a story?\\xa0 Well, as we learned, everything.\\xa0 Our patients aren\\u2019t \\u201cthe 76 year old with heart failure in room 202,\\u201d as Heather Coats astutely noted.\\xa0 They\\u2019re people, and what makes us people if not our life\\u2019s stories?\\xa0 Our loves, our triumphs, our failures, our work, our families.\\xa0\\xa0

Thor Ringler helped start the My Life My Story project at the Madison VA in Wisconsin.\\xa0 It\\u2019s since spread to over 70 VAs.\\xa0 VA \\u201cgets\\u201d the importance of storytelling in medicine, without the need for reams of research to back it up.\\xa0 As Thor notes, capturing patient stories has face validity as positively impacting the patients who share their stories and have them documented, and for the clinicians who get to truely and deeply know their patients in far greater depth than \\u201cwhat brought you to the hospital?\\u201d Heather Coats is hard at work establishing the evidence base for the power of capturing patient stories in healthcare settings, for those health systems that need a little more convincing.\\xa0\\xa0\\xa0

Wonderful work.\\xa0 Enjoy!

Many links:

VA Presents: My Life, My Story: George: A Voice To Be Heard on Apple Podcasts
https://podcasts.apple.com/us/podcast/id1529359511?i=1000489683280

Every Veteran has a story. Our mission is to help them tell it.
https://www.va.gov/wholehealth/mylifemystory/

My Life, My Story: VA\\u2019s healthcare improvements through deliberate storytelling - YouTube
https://www.youtube.com/watch?v=fpzgVlExS20&ab_channel=VeteransHealthAdministration

Storytelling Helps Hospital Staff Discover The Person Within The Patient
https://www.npr.org/sections/health-shots/2019/06/08/729351842/storytelling-helps-hospital-staff-discover-the-person-within-the-patient

A few data based publication links from Person-Centered Narrative Intervention Program of Research:\\xa0

Unpacking characteristics of spirituality through the lens of persons of colour living with serious illness: The need for nurse-based education to increase understanding of the spiritual dimension in healthcare
https://onlinelibrary.wiley.com/doi/abs/10.1111/jocn.16055

Integration of Person-Centered Narratives Into the Electronic Health Record: Study Protocol
https://pubmed.ncbi.nlm.nih.gov/32740306/

Bennett, C.R., Shive, N., Coats, H. (2020). What Mattered Then, Now, and Always: Illness Narratives From Persons of Color. Journal of Hospice and Palliative Nursing, 22 (5):392-400/ PMID: 32740304
https://pubmed.ncbi.nlm.nih.gov/32740304/

Coats, H., Meek, P., Schilling, L., Akard, T., Doorenbos, A. (2020). Connection -- The Integration of a Person-Centered Narrative Intervention into the Electronic Health Record: An implementation study. Journal of Palliative Medicine, 23 (6)
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7249456/

Coats, H., Crist, J., Berger, A., Sternberg, E., & Rosenfeld, A. (2015). African American elders\\u2019 serious illness experiences: Narratives of \\u201cGod did,\\u201d \\u201cGod will,\\u201d and \\u201cLife is better.\\u201d Qualitative Health Research. doi:10.1177/1049732315620153.\\xa0 PMID: 26701962
https://journals.sagepub.com/doi/abs/10.1177/1049732315620153.\\xa0

Narrative Methods Textbook referenced in podcast
Narrative Methods for the Human Sciences

A few Dignity Therapy- Harvey Max Chochinov links

https://dignityincare.ca/en/about-us.html

About us - Dignity in Care
https://dignityincare.ca/en/about-us.html

Research Team - Dignity in Care
https://dignityincare.ca/en/research-team.html

Other links:

Curiosity by Faith Fitgerald
https://www.acpjournals.org/doi/full/10.7326/0003-4819-130-1-199901050-00015

Eric\\u2019s blog post on Dignity Therapy from 2011
https://geripal.org/study-of-dignity-therapy-on-distress/

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