Consenting Research Participants
This week's podcast is hosted by Anna Volkmer discussing a topic that she is particularly passionate about; consenting participants into dementia research. She is joined by Dr Clarissa Giebel, Dr James Fletcher and Dr Aida Suarez-Gonzalez all who have first-hand experience of consenting adults into dementia research trials and studies and share their experiences and tips. Listen to hear how each of the panellists find navigating the 'grey area' of capacity, hear a remarkable story of bravery from one person who took part in dementia research and hear the panel discuss how we could all benefit from taking the time to produce inclusive documents that are not too long and jargon-filled. The panel discuss their experiences within the context of adhering to the English and Welsh mental capacity act of 2005: http://www.legislation.gov.uk/ukpga/2005/9/contents The useful website Dr Aida Suarez-Gonzalez mentions can be found here: https://www.changepeople.org/ The resources developed by Jill Pearl and Speakability can be found in their new home on the Collaboration of Aphasia Trialists (CAT). You can find out more about our panellists, and their work on our website www.dementiaresearcher.nihr.ac.uk. A transcript of this podcast is also available on our website. Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode. _________________________ If you would like to share your own experiences or discuss your research in a blog or on a podcast, drop us a line to dementiaresearcher@nihr.ac.uk or find us on twitter @dem_researcher This podcast is brought to you in association with Alzheimer's Research UK and Alzheimer's Society, who we thank for their ongoing support.