Broadcasts.com - "Providing a Safe and Functional Community for Cancer Survivors" (Community Signal)

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Providing a Safe and Functional Community for Cancer Survivors

Published: March 7, 2022, 10:30 a.m.

Online communities are can be essential for people impacted by illness. For those directly affected, their families, and support systems, these communities can provide a much needed place to share experiences, to vent, and to learn about different symptoms, treatments, and the intricacies of navigating the healthcare system. For our guest,\xa0Amanda Petersen,\xa0Planet Cancer\xa0provided such a community as she fought breast cancer in her early twenties.

Amanda has since continued to be an active contributor and moderator in online spaces dedicated to providing a safe and functional community for cancer survivors. In this conversation, she talks about the role that Planet Cancer played in her life in addition to why she felt motivated to start participating in\xa0r/breastcancer. The community exists and is functional because of its people \u2013\u2013 people like Amanda that help to moderate the space and people that are looking to connect with others and find support in their journeys.

Whether a moderator takes a break or community members sadly pass away or move on, the rules that they have created and the space that they\u2019ve fostered will continue to provide a meaningful community for cancer survivors.

Amanda and Patrick also discuss:

Rules that are representative of the community they serve and protect
The emotional labor of managing a community of care
How Planet Cancer helped Amanda through her own journey with cancer

Our Podcast is Made Possible By\u2026

If you enjoy our show, please know that it\u2019s only possible with the generous support of our sponsor:\xa0Hivebrite, the community engagement platform.

Big Quotes

What makes a space for cancer survivors not functional?\xa0(12:27):\xa0\u201c[After you have been in the] support community space for so long, there are certain things that you start IDing [that indicate] this is no longer a functional space for survivors. People flooding it when they\u2019re concerned about having cancer, while totally legitimate, will drive away your survivors. People asking for donation requests will drive away your survivors. People asking for research requests will drive away your survivors.\u201d \u2013@amandarhiann

The important roles of active moderators in a subreddit\xa0(15:46):\xa0\u201cUnless the moderators are paying attention, Reddit can be a very unsafe place for many reasons. With strong moderator teams, it can be a safe place of healing.\u201d \u2013@amandarhiann

Why r/breastcancer does not allow pre-diagnosis posts\xa0(19:13):\xa0\u201cDon\u2019t take advice about your health from someone at a grocery store, [and that also] applies to Reddit. [People] need to go to their doctor, and there are tons of pre-diagnosis resources out there that aren\u2019t going to force people who are actively going through treatment to answer questions they shouldn\u2019t have to answer.\u201d \u2013@amandarhiann

The emotional tax of research requests for cancer survivors\xa0(21:04):\xa0\u201c[r/breastcancer] is a place for helping people navigate the complexities of breast cancer. It\u2019s not a place to help other people do their jobs better. Sure, if you want to come and read [or] do text analysis on Reddit, go ahead, it\u2019s all public, but don\u2019t harm the people that we\u2019re trying to help, even inadvertently.\u201d \u2013@amandarhiann

About Amanda Petersen

Amanda Petersen\xa0is the program manager for community operations at\xa0MURAL. Prior to working in community, Amanda spent ten years of her career helping people who used challenging behaviors to communicate complex needs. In tandem, she moderated and managed online support communities for young adults with cancer.