Pediatric To Adult Care: A Team Effort
b"Guest: John D. Mahan, MD
\\n\\n Guest: Guido Filler, MD, PhD, FRCPC
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X-linked hypophosphatemia is misperceived as a childhood-only disease. In reality, patients of all ages and their clinicians struggle with lifelong, difficult-to-manage consequences. This program presents crucial fundamentals for clinicians seeking to control disease impacts, prevent complications and improve patient quality of life.
The following information is discussed:
- The critical importance of early awareness, timely diagnosis and challenges of frequent misdiagnoses
- Countering misperceptions that confound long-term care and worsen outcomes
- Health Care Transition (HCT) recommendations to smoothly move patients from child to adult care models
- Care planning essentials to improve a patient's lifelong journey with a rare disease
- Tools to educate and empower patients while facilitating meaningful patient-clinician communications