Free for Life: The Story of n-Lorem Foundation
When patients face the diagnosis of a rare disease, they face a costly, uphill battle to develop a treatment for their condition\u2026 that is, if they ever do. \xa0
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Dr. Stanley Crooke is aiming to change that. As the CEO of n-Lorem Foundation, his mission is to provide personalized treatments to ultra-rare disease patients for free as long as they live, no questions asked. Thanks to his humility, coupled with the generosity of other individuals and companies, ultra-rare disease patients have a renewed hope to get the treatments others may not be able to provide. \xa0
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Join Dr. Crooke as he reflects on his humble beginnings at Ionis, the approach n-Lorem takes to developing drugs for ultra-rare diseases, and what the future holds for research in this area.
Show Notes\xa0
- n-lorem Foundation\xa0
- Charles River - Rare Disease\xa0
- Vital Science S4, E01 Project ALS: Fueled by Love\xa0
- 2021 Rare Disease Trailblazers\xa0
- BioSpace: n-Lorem Foundation Preps First Doses to Treat Ultra-Rate Disease Patients for Free\xa0
- Ionis Pharmaceuticals\xa0
- Nature Medicine: Antisense oligonucleotide silencing of FUS expression as a therapeutic approach in amyotrophic lateral sclerosis\u202f\xa0