TPP 340: Meghan Ashburn and Jules Edwards on Autistic Adults, Autism Parents, and the Children Who Deserve a Better World

Published: Aug. 22, 2023, 6 a.m.

My guests today are on a mission to show parents that there are different ways of approaching autism beyond what they\u2019re told in doctors or therapists offices. Meghan Ashburn and Jules Edwards, co-authors of the book\xa0I Will Die on This Hill: Autistic Adults, Autism Parents, and the Children Who Deserve a Better World,\xa0are making it really clear that there is no one size fits all for any families and that there is so much to learn from just listening more.\xa0\nMeghan Ashburn is a continuous learner, educational consultant, parent mentor, and co-author of I Will Die On This Hill. She's passionate about helping schools create more inclusive, accessible environments. Her online book club has over 10K members, and releases book recommendation lists on autism and neurodiversity. Meghan advocates for communication rights and inclusion at the local, state, and national level. She sits on her school district's Special Education Advisory Committee (SEAC) and is a recent graduate of Virginia's Partners in Policymaking.\nJules Edwards is a neurodivergent Anishinaabe writer, gardener, accountant, and disability justice advocate. She is the parent of neurodivergent Afro Indigenous people, and care provider to many neurodivergent children throughout the years. Jules is passionate about building community and works to improve child safety and disability policy.\nCurrent roles include: care work of disabled youth, co-founder of Minnesota Autistic Alliance, board member for the Minnesota Ombudsman for American Indian Families, board member of The Arc Minnesota.\xa0She serves as the elected chairperson of the Minnesota Autism Council, a workgroup of the Senate Human Services Reform Finance and Policy Committee.\n\nThings you'll learn from this episode\n\nWhat disability justice is\n\nWays that allistic and autistic parents raising autistic children can work together toward our common goals for our kids\n\nThe harms of a continual pursuit for \u201cnormal\u201d in ways that don\u2019t respect or embrace our kids\u2019 neurodivergence\n\nWhy self-determination should be the goal over \u201cindependence\u201d\n\nWays that allistic parents may be perpetuating ableism without realizing it\n\nWhat an \u201cautism moon\u201d is and why ideal for families who are navigating a new diagnosis of autism\n\n\n\xa0Resources mentioned\n\nMeghan Ashburn\u2019s website Not an Autism Mom\n\nMeghan Ashburn\u2019s Au-Some Book Club\n\n\nI Will Die on This Hill: Autistic Adults, Autism Parents, and the Children Who Deserve a Better World\xa0by Meghan Ashburn and Jules Edwards\n\n\nThe Reason I Jump: The Inner Voice of a 13-Year-Old Boy with Autism\xa0by Naoki Higashida\n\n\nLearn more about your ad choices. Visit megaphone.fm/adchoices