127. A Family Touched by Vascular Ehlers Danlos Syndrome: The Life & Legacy of Lizzie Gasser

Published: May 24, 2021, 10:22 p.m.

In the last episode, episode 126, we discussed pregnancy and aortic disorders as part of The CardioNerds Cardio-obstetrics Series. This episode brought to mind episode 76, where our colleagues from the Cleveland Clinic taught us about a woman named Lizzie Gasser, who at the young age of 27 tragically presented with postpartum pulmonary edema, found to have papillary muscle rupture, and was ultimately diagnosed with Vascular Ehlers Danlos Syndrome (VEDS) at autopsy. This case has been published in JACC Case Reports: CardioNerds Corner. \n\n\n\nNow, in this very special episode, we meet Lizzie Gasser, beyond her heart disease through the eyes of her loving husband, Todd Gasser. Her legacy underscores the importance of seeing our patients as people beyond their illness, in the context of their lives, values, and loved ones. This powerful discussion is led by Dr. Erika Hutt (cardiology fellow at the Cleveland Clinic) and Dr. Eunice Dugan,\xa0 (internal medicine resident at Johns Hopkins Hospital). Dr. Harry \u201cHal\u201d Dietz (professor of pediatrics, an associate professor of medicine and an assistant professor of neurological surgery at the Johns Hopkins University School of Medicine and a leading authority on genetic aortopathies (including Loeys-Dietz Syndrome which carries his name).\n\n\n\nAudio editing by\xa0CardioNerds Academy Intern,\xa0Dr. Maryam Barkhordarian.\n\n\n\nThis episode is brought to you in collaboration with the VEDS Movement. The VEDS Movement\u2019s mission is to save lives and improve the quality of life of individuals with Vascular Ehlers-Danlos Syndrome (VEDS). By pursuing the most innovative research, educating the medical community, general public and affected individuals, and providing support to patients, families, and caregivers, The VEDS Movement, which is a division of The Marfan Foundation, charges forward and improves the outcomes for those living with\xa0VEDS. Individuals affected with VEDS can access medical webinars presented by the experts, join support groups, get involved in events and research, and donate by visiting\xa0TheVEDSMovement.org. Providers can also find resources, including CME opportunities, at\xa0TheVEDSMovement.org.\n\n\n\n\n\n\n\n\n\n\n\nCardioNerds Case Reports PageCardioNerds Episode PageCardioNerds AcademyCardionerds Healy Honor Roll\n\n\n\n\n\nCardioNerds Journal ClubSubscribe to The Heartbeat Newsletter!Check out CardioNerds SWAG!Become a CardioNerds Patron!\n\n\n\n\n\nPhotos & Youtube videos featuring Lizzie Gasser and her family\n\n\n\n\n\n\n\n\nhttps://www.youtube.com/watch?v=W4sVuctrUZs&t=1s\nVideo from the VEDS\xa0movement that Lizzie's family is interviewed in. Their interview is from 7m30s - 17m16s\xa0\n\n\n\n\n\n\nhttps://www.youtube.com/watch?v=6CeXYnZHhbg\nVideo of Lizzy's life life that\xa0a\xa0friend put together.\n\n\n\n\n\n\n\n\n\nEpisode Guests\n\n\n\nDr. Erika HuttDr. Eunice DuganDr. Harry \u201cHal\u201d Dietz\n\n\n\nCardioNerds Case Report Production Team\n\n\n\n\nKaran Desai, MDAmit Goyal, MDDaniel Ambinder, MD